The partnership between nurses and families is based on mutual trust, and defining the boundaries and rules clearly will help everyone involved, especially your child.
An informed parent or caregiver becomes empowered, and empowerment can lead to the best care for our children.
With emotions ranging from fear, grief and anger to happiness and relief, the process of bringing home a child who needs in-home care can be complicated
Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support the health of their children.
Think of instinct as an unscientific, unquantifiable tool that can be used along with more concrete evaluations to make a well-rounded decision.
The more love and support your child receives, the richer his or her life becomes, and nurses can certainly add to the circle of love surrounding your child.
Even though our journey as parents of a medically fragile child began with emotional turmoil, it has since become a purposeful odyssey that brings meaning and depth to our lives. This is the road we were born to travel.
An exhausted parent can’t provide the best care, although occasionally, we have all had to do so.
Managing in-home nursing is not always easy. It can be terribly frustrating sometimes, and it can take a while to feel like everything is under control, but success is possible.
When it is managed effectively, in-home nursing can become a support for caregivers and families stressed with the care of a medically fragile child.
The scariest, ugliest stories about in-home nursing usually are the result of nurses demonstrating a lack of professionalism, bad morals or a disregard for the child for whom they are providing care.
In the great tornado of life, things sometimes seem out of control, and we can’t see where we are going. But sometimes, when the storm passes and the dust settles, things have landed into place beautifully.